How I See It: Reflections on spirituality, technology, and the art of everyday life

Still waiting Feb 2011 A Letter to My Doctor I’ve been having trouble reaching you to discuss my treatment plan and next steps. I’m not sure if you’ve been receiving my messages. I’ve called your office and left voicemails but haven’t heard back. I understand you’re very busy and caring for many patients, but please let me know how I should proceed. On February 9th, I had the last steroid treatment covered by my current prescription. The next round should be a three-day course on March 9th, 10th, and 11th. I’ll need a new prescription for that and future treatments. I’m not certain who will be issuing these going forward. I saw Dr. XXXXXXX last month. He doesn’t believe any additional treatment for the thyroid cancer is needed right now, though we’ll do more studies in September. He did recommend that I see a new neurologist. I’d like to know if you can suggest someone or refer me to the MS Clinic at OHSU to see a neuroimmunologist—or should I try to make those arrangements myse...

A few thoughts while I am waiting. Right now, I’m in the waiting game. On Friday, I’ll see my surgeon to review the results of my latest tests and figure out a plan for going forward. I’m seeing the surgeon because my endocrinologist is currently on medical leave. Before facing whatever comes on Friday, I wanted to look back at this year’s medical rollercoaster. The last time I wrote was in January. Since then, I’ve had my share of ups and downs — including four different cancer scares that, thankfully, turned out to be nothing. I also went through some very painful physical therapy. It turns out I’ve had so much radiation that the muscles in my neck have begun fusing together, and they had to be gently pulled apart. In April, I needed to use my cane again for a few days until I could get more steroids. My doctor has now decided I’ll need extra treatments every three months to stay on my feet. In June, I noticed my shoes were wearing out quickly because of what’s called a “...